Advocacy Relations Director, Thyroid Eye Disease (TED)

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Since 1980, we’ve helped pioneer the world of biotech in our fight against the world’s toughest diseases. With our focus on four therapeutic areas –Oncology, Inflammation, General Medicine, and Rare Disease– we reach millions of patients each year. As a member of the Amgen team, you’ll help make a lasting impact on the lives of patients as we research, manufacture, and deliver innovative medicines to help people live longer, fuller happier lives.

Our award-winning culture is collaborative, innovative, and science based. If you have a passion for challenges and the opportunities that lay within them, you’ll thrive as part of the Amgen team. Join us and transform the lives of patients while transforming your career.

Advocacy Relations Director, Thyroid Eye Disease (TED)

What you will do

Let’s do this! Let’s change the world. In this vital role the Director of Advocacy Relations for Thyroid Eye Disease (TED) will lead the development and execution of patient advocacy strategy for this rare autoimmune condition. This is a unique opportunity to make a meaningful impact by partnering with patients, caregivers, and advocacy organizations navigating the complexities of TED. You’ll serve as a trusted voice within the rare disease community—amplifying patient perspectives, fostering strategic partnerships, and advancing solutions where the need is greatest.

It is highly desired that this role be based in Deerfield, IL, reporting to the Senior Director, Rare Disease Advocacy Relations however other remote US locations may be considered.

Key Responsibilities:

• Lead the development and execution of a TED advocacy strategy focused on raising disease awareness, supporting diagnosis, and addressing access-related needs.

• Cultivate deep, trust-based partnerships with TED advocacy organizations, patients, and caregivers - ensuring the rare disease community is at the center of everything we do.

• Champion education and awareness by collaborating with advocacy partners to close diagnostic gaps, support programs that bring the TED community together, and empower patients to speak with their healthcare providers about their symptoms.

• Partner with Marketing, Medical, Communications, and Patient Access teams to amplify patient voices and develop programs that enhance understanding of TED.

• Embed the patient voice and integrate actionable insights from the TED community across cross-functional strategies, ensuring lived experiences meaningfully shape decisions, priorities, and solutions.

• Develop scalable, tailored advocacy approaches grounded in empathy and rare disease expertise, recognizing that traditional models may not meet the needs of this smaller, often underserved community.

• Establish clear metrics and feedback mechanisms to evaluate the impact of advocacy initiatives, ensuring efforts are aligned with strategic goals and continuously informed by community needs and outcomes.

• Elevate Amgen’s reputation in rare disease through co-created meaningful programs with the patient community that reflect shared goals, build long-term trust, foster empowerment and a sense of belonging.

• Operate with agility and integrity, adapting to evolving community needs while staying aligned with business priorities.

• Cultivate a high-performing team aligned with the urgency and compassion required to make a difference in the lives of rare disease patients.

What we expect of you

We are all different, yet we all use our unique contributions to serve patients. The Advocacy professional we seek will have these qualifications.

Basic Qualifications:

Doctorate degree and 4 years of patient advocacy and/or healthcare policy experience

Or

Master’s degree and 7 years of patient advocacy and/or healthcare policy experience

Or

Bachelor’s degree and 9 years of patient advocacy and/or healthcare policy experience

Preferred Qualifications:

• 7+ years of experience with patient advocacy groups, including direct work in rare disease communities or with low-prevalence conditions.

• Demonstrated ability to design and lead patient advocacy strategies in areas where diagnosis is delayed, awareness is limited, and treatment options are evolving such as rare disease.

• Experience navigating the complexities of small, highly engaged patient communities where individuals often serve as both advocates and subject matter experts.

• Strong understanding of how rare disease patients and caregivers engage through non-traditional channels, including online communities, grassroots initiatives, and decentralized peer support networks.

• Familiarity with the diagnostic and referral challenges common in rare autoimmune or specialty conditions.

• Experience articulating the value of innovation in rare diseases, particularly where standard pathways for access, data, and reimbursement may not apply.

• Outstanding verbal and written communication skills, with the ability to adapt to diverse audiences and perspectives.

• Sensitivity to diverse groups of people both internal and external with the ability to manage many different opinions and perspectives, including tolerance for ambiguity.

• Strong executive presence with a demonstrated reputation internally and externally as a respected and collaborative partner.

What you can expect of us

As we work to develop treatments that take care of others, we also work to care for your professional and personal growth and well-being. From our competitive benefits to our collaborative culture, we’ll support your journey every step of the way.

The expected annual salary range for this role in the U.S. (excluding Puerto Rico) is posted. Actual salary will vary based on several factors including but not limited to, relevant skills, experience, and qualifications.

In addition to the base salary, Amgen offers a Total Rewards Plan, based on eligibility, comprising of health and welfare plans for staff and eligible dependents, financial plans with opportunities to save towards retirement or other goals, work/life balance, and career development opportunities that may include:

• A comprehensive employee benefits package, including a Retirement and Savings Plan with generous company contributions, group medical, dental and vision coverage, life and disability insurance, and flexible spending accounts

• A discretionary annual bonus program, or for field sales representatives, a sales-based incentive plan

• Stock-based long-term incentives

• Award-winning time-off plans

• Flexible work models, including remote and hybrid work arrangements, where possible

Apply now and make a lasting impact with the Amgen team.

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Application deadline

Amgen does not have an application deadline for this position; we will continue accepting applications until we receive a sufficient number or select a candidate for the position.

As an organization dedicated to improving the quality of life for people around the world, Amgen fosters an inclusive environment of diverse, ethical, committed and highly accomplished people who respect each other and live the Amgen values to continue advancing science to serve patients. Together, we compete in the fight against serious disease.

Amgen is an Equal Opportunity employer and will consider all qualified applicants for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, protected veteran status, disability status, or any other basis protected by applicable law.

We will ensure that individuals with disabilities are provided reasonable accommodation to participate in the job application or interview process, to perform essential job functions, and to receive other benefits and privileges of employment. Please contact us to request accommodation.